Tuesday, June 26, 2012

the day Daddy died



     It was a cool November day and Thanksgiving had passed.   I sat in my favorite chair with my feet propped up and just stared out the window for what seemed like minutes but it was actually an hour.  I knew what I needed to get up and do but I just didn’t have the strength.
     I called my brother at the hospital fully expecting him to tell me that Dad had passed away in the night but instead he told me that Dad was still with us.  At this point I was completely numb.  In order to take my mind off things I called an old friend in Houston.
     As soon as Cindy knew it was me she asked me how my dad was.  I told her and her immediate response was, “Why aren’t you with your dad?”  I told her that I just couldn’t relive the hardest goodbye of my life.  “I can’t say goodbye again.”  Cindy said, “Get off the phone right now and go be with you dad or you will regret this for the rest of your life.”  I knew Cindy was right.  I took a deep breath and started getting ready to go up to the hospital.
     As I walked into the hospital room I saw the dearest and sweetest man I have ever known lying in bed.  He still looked like Santa Clause with his white hair and full white beard but there was no longer a twinkle in his eyes.  He just laid there looking very tired.  I leaned over to kiss him and stroke his hair and he whispered, “Trust God.”  Those were the only words I had heard my dad say for the last several days but he had said them many times.
     None of us knew what to do that day.  What do you do when someone you love is exhausted, doesn’t eat anymore, and is waiting to die?  Part of me wanted to just shake him and beg him to keep trying, to eat, and to overcome the cancer racking his body, but all I could say was, “Daddy, you are so tired, aren’t you?”
     Suddenly I was interrupted by the nurse that wanted to give Dad a sponge bath.  I so wanted to stay by his side but quietly left the room.  I knew Dad would hate this.  He was a prideful man that wouldn’t want to be taken care of in this manner.  I knew he was sick because he didn’t say a word.
     I saw that Dad’s brother, my uncle Dan, had just arrived to see Dad and pay his last respects.  I hugged him as hard as I could because he looked so much like Dad and was such a symbol of life rather than death.  We went to have a cup of coffee and laughed about old times together.  We continued to share old stories as we went up the elevator and walked to Dad’s room to see how he was doing.  By then the room was pretty full with my mom, brothers and sisters-in-law and husband, Bill.  We all gathered around the bed telling stories and laughing together.  
     I thought to myself, “Is this respectful? With this thought I looked down to see Dad’s labored breathing.  Bill was standing next to me and gently said, “Georgia” to my mother.  She started crying as Dad drew his last breath and she kissed him on the forehead.  We all instinctively grabbed each other’s hand and Bill started to pray as Dad headed into heaven.  This was truly one of the most spiritual moments of my life.  Dad had the pleasure of seeing me ushered into life and I had the privilege of being with him as he was ushered into eternal life.  I have never experienced anything so powerful.      I brushed his hair one last time with tears running down my face and kissed him on his forehead.  Then once again, I was ushered out of the room so the nurse could clean him up.  I wished she didn’t have to do that.
     In the midst of something so spiritual and beautiful were the realities of this life.  His eyes had to be closed because he could no longer do it, his body had to be cleaned up and prepared for burial and all of his belongings he no longer needed had to be packed up.  The poster his granddaughters had made encouraging him to get better was packed up.  The flowers and cards from friends were packed up.  As the coroner came into his room, we left to go home and weep.
     I never wept so hard.  I was so sick to my stomach that I thought I would never be well again.  The nausea lasted for days, then weeks, then months, and then even years.  I felt as though my hero was gone and would never return.
     One of Dad’s favorite songs played at his funeral was, “How Great Thou Art.”  God used that song to minister to me so many times in the months that followed his death.  On the days that I was at my lowest, that song would suddenly be played in church or on the radio.  It was heartbreaking, yet soothing.
     On one of my lowest days, I had prayed that God or Dad would just give me a sign that would make me feel close to Dad.  I had gone out shopping to try to take my mind off of things.  I went into one of my favorite stores and saw a young woman that I recognized but I didn’t know where from.  I kept an eye on her as she traveled throughout the store, hoping that I would remember soon.  All of a sudden, the young woman turned and saw me.  She immediately ran over to me and said hello.  She was so excited and asked me how Dad was.  She could tell I was a little surprised and then said, “I was your dad’s nurse for awhile.”  I told her that Dad had passed away a couple of weeks ago.  She was surprised and sad.  She said,  “I really thought he was going to make it.”
      Then she proceeded to tell me that Dad had changed her life.  I asked her how and she said, “Every night when I was taking care of your dad he would quote scripture to me.  And he always ended with ‘You have been blessed to be a blessing.’”  I started sharing what he told me to my husband every night.  He began to ask me, ‘What did the old man say today?’  Then I started sharing everything with my little girl and she would ask me, ‘What did the old man say today?’  He changed my perspective and changed my life.”  
     That is what I needed to hear that day.  I needed to know that Dad mattered to people and that Dad lived on.  The day he died I just wanted the world to stop for a few minutes but it didn’t.  In fact, I walked out to the lobby of the hospital soon after he died and they were putting up Christmas decorations.  I wanted to grab all of them and beg everyone to let me mourn and mourn with me.   Didn’t they understand that I had just lost one of the most important people in my life?  The nurse, at least, reminded me that Dad was still making an impact.
     It has been a number of years now and I know Dad’s legacy lives on.  I see it in his wife, his sons, his grandchildren, and in his great-grandchildren.  Every day I think about Dad and there isn’t a day that goes by that I don’t try to live out what he taught me.

Monday, June 18, 2012

Ideas for Ministering to Parents

I often share ideas about ministering to children with special needs, but thought I would take a minute to share some ideas for the parents that need support.  Over the years we held a variety of outreach and ministry events.  Here are 25 ideas to get started:


  • Family Picnic
  • Parents Only Potluck
  • Parents Prom Night
  • Parents Game Night (just for fun!)
  • Parents Night Out (they go out for the evening)
  • Parenting Class (how to modify traditional parenting courses to the family with special needs)
  • Have a superintendent, administrator, counselor, or teacher talk about "How to Fight for the Rights of Your Child While Keeping Your Christian Witness"
  • Have parents of older children share their story on how to keep the family intact
  • Have a speaker on keeping the marriage strong
  • Have someone speak on independence options for the adult child with special needs
  • Have someone speak on financial issues, wills, etc for the family with special needs
  • Have someone speak on "How to Have an Effective ARD Meeting"
  • Have a speaker on adult children with special needs and navigating adulthood (employment, dating, etc.)
  • Have a variety of speakers on autism, Down Syndrome, sensory integration, etc.
  • Have a speaker on "How to Meet the Needs of Siblings"
  • Have a speaker on "Resources Available to the Family With Special Needs"
  • Have speakers on behavior modification, restraint, and calming techniques
  • Provide a resource fair for families
  • Provide a day of effective workshops for families
  • Provide a lending library available to families with a variety of resources and encouraging books
  • Have a fine arts evening where students can display their artwork, poetry, etc.
  • Have a talent show
  • Have an evening of celebration (anniversary, something God has done, change in leadership, facility addition)
  • Ladies Night (a speaker addressing the specific needs of mothers)
  • Men's Night (a speaker addressing the specific needs of dads)
I hope these ideas spur on some evenings of great ministry.  If you have some ideas to share I would love to read them!

Blessings,
Deana




Sunday, June 17, 2012

Updating Ministry

In the Special Needs Ministry we have had three different classrooms for some time.  We have one for the younger and/or more fragile children, one for older/more active children and one for adults.

Our classroom for the younger and/or more fragile children, King's Kids A, has been relatively easy.  We have an incredibly committed and skilled teacher who has served for over ten years.  Her biggest goal has been to be able to share the gospel with the children and she has through music, worship, prayer, and Bible stories.  She uses nursery and preschool Sunday School lessons and combines it with interactive manipulative's to help the children stay focused and connected to her.  I love walking into that classroom because the volunteers have so much passion and compassion for the children.  The room has a sense of calm and peace to it.

Our adult classroom has been a beautiful miracle to watch.  Years ago I used to think the adults should be mainstreamed into traditional adult classes and we would adapt to help them get the most they could out of a Sunday morning.  In some aspects I think this can be effective, but the family that has formed in this self-contained classroom is something beautiful.  

We have about 10 adults, ranging from 18 to 42 that meet every week.  They have a time of crafts, worship, Bible lesson, and prayer.  They all have so much respect and encouragement for each other.  I love to go in their classroom and listen to them share about their interests, friendships, jobs and love for God.  Their faith and relationships with people and God seem so pure to me, as God intended them.

Our class for older and more active children, King's Kids B, has caused us to think a little harder.  This class is made up of the kids we have watched grow from toddlers to teens.  Their interests and needs have changed so much over the last 15 years.  

For many years I hoped that one day we would find a miraculous curriculum that would have them spellbound and they would all be able to come to the table and interact for 15 minutes over the lesson.  I wanted to feel confident that they would hear and receive the gospel.  God keeps us trusting, however.  I love that as a Christian I am not responsible for someone's salvation, I am only responsible for sharing it.  I get to trust God and the Holy Spirit with the rest!

We are still searching for the best format for this classroom but have learned a few things along the way.  There is not a magic solution that works for every student in the classroom.  The range of needs is greater than the other two classrooms and ideally, it would be most effective if we could have a greater teacher to student ratio.  We have some amazing volunteers pouring their hearts and souls into the students and they have developed some very special bonds.  The teachers work individually with the students and mainstream them as much as possible with the rest of student ministry.

Recently Heidi, our volunteer in KKA started researching the use of the i-pad for King's Kids B. The church graciously provided three of them for the classroom and an occupational therapist, Marti Smith,  met with her to show her different ways to use it effectively.  It can be used for communication, worship, Bible lessons, Gospel presentations, and as an effective reward.  She shared that "Pinterest" is a great source for finding apps to use with the students.  The OT also suggested asking the congregation to consider donating their older i-pads as they purchase newer versions.

One of the many things I love about ministry is that you don't get bored.  Ministry is constantly evolving and changing as the students evolve and change, as well as culture and technology.  We are blessed to have staff, leadership, and volunteers that continually seek to be educated and innovative in communication, but pure and simple in their love.

If you have found curriculum, resources, and tools that have been effective, I would love for you to share in the comment section.  If you have any questions feel free to comment or e-mail sntraining@hcbc.com or theboggi@aim.com.

Monday, June 11, 2012

06-11-12

My first book for the summer, out of my mind, by Sharon Draper, was very moving.  It challenged my thinking and helped me realize how narrow-minded I can be.  As a good friend shared with me, "Not being able to speak is not the same as not having anything to say."   I truly need to work harder on finding ways to communicate, other than just the methods I rely on.

Yesterday I finished my second book for the summer, same kind of different As me, by Ron Hall and Denver Moore.  It is the story of a couple having marital struggles until they started serving in ministry together at a mission for the homeless.  The book shares the story of the incredible friendship that develops between the husband and a man that is homeless.  God revealed the friendship to the wife who continually prayed and watched as God did His thing in all of their lives.  Again, I saw how narrow-minded I can be.

Both of the books revealed God's grace to me.  First of all, the grace He has bestowed on me when there are so many things about people that I just presume to understand.  He helped me to walk in the shoes of a young girl that cannot walk or speak, as well as a man that is a modern-day slave and has the challenge of homelessness.  One thing I love about grace is whenever God reveals to me another way I need to learn about grace, He demonstrates another example of the grace He has given me.


Each of you should use whatever gift you have received to serve others, as faithful stewards of God’s grace in its various forms.
1 Peter 4:9-11

Wednesday, June 6, 2012

06-06-12

If you know me very well, you know that I love words.  I love them on fabric, I love them on notes, I love them on the wall, and I love them in books.  They have more power than most things in life.

I had a nice gift this week found in the book, out of my mind by Sharon Draper.  Enjoy...

Words.
I'm surrounded by thousands of worlds.  Maybe millions.
Cathedral.  Mayonnaise.  Pomegranate.
Mississippi.  Neapolitan.  Hippopotamus.
Silky.  Terrifying.  Iridescent.
Tickle.  Sneeze.  Wish.  Worry.

     Words have always swirled around me like snowflakes-
each one delicate and different, each one melting untouched
in my hands.
     Deep within me, words pile up in huge drifts.  Mountains of
phrases and sentences and connected ideas.  Clever expressions.
Jokes.  Love songs.
     From the time I was really little-maybe just a few months 
old-words were like sweet, liquid gifts, and I drank them like
lemonade.  I could almost taste them.  They made my jumbled
thoughts and feelings have substance.  My parents have always 
blanketed me with conversation.  They chattered and babbled.
They verbalized and vocalized.  My father sang to me.  My
mother whispered her strength into my ear.
     Every word my parents spoke to me or about me I absorbed
and kept and remembered.  All of them.
     I have no idea how I untangled the complicated process
of words and thought, but it happened quickly and naturally.
By the time I was two, all my memories had words and all my
words had meanings.
     But only in my head.
     I have never spoken one single word.  I am almost eleven
years old...




Tuesday, June 5, 2012

06-05-12

I am continuing to read, "out of my mind," by Sharon Draper.  My life has a wonderfully busy schedule so I am only able to read a few chapters at a time, but I always look forward to the next chance I have to read another chapter.

I have been a Sunday School teacher or served in another area of ministry for a long time.  I love kids...all kids.  I have been an advocate for children without a voice, but it is so important to me that all kids feel special, no matter what their abilities or disabilities are.  I try to see every child as exceptional and acknowledge that very child has a challenge.  Every child has something to offer the world.

One of my favorite parts of the book so far was when Mrs. V came into Melody's life.  Melody is in a wheelchair and cannot speak.  So far Melody has been alone with her thoughts for the most part, but Mrs. V has an incredible ability to connect with Melody.

The first time Mrs. V was introduced to Melody her father said hesitantly, "Well, Melody is, well, you know, really special."  

The response was, "All kids are special, Mrs. V had replied with authority.  'But this one has hidden superpowers.  I'd love to help her find them.'"

I love Mrs. V's response.  The reality of Melody's challenges did not stop the potential she saw in her and she acknowledged this is true of all children.  To be honest, the "superpower" in all of us, is God and whatever He empowers us to do.  Truly, the sky is the limit.  Some of my favorite Bible verses are, 


For I know the plans I have for you,” declares the LORD, “plans to prosper you and not to harm you, plans to give you hope and a future.  Jeremiah 29:10-12


So do not fear, for I am with you; do not be dismayed, for I am your God. I will strengthen you and help you; I will uphold you with my righteous right hand.  Isaiah 41:9-11


God has plans for us with a hope and a future.  He also will strengthen and help us.  Whenever I have a new student or friend, I have to take a minute to ask myself, "Am I hindering God's plan for them or encouraging it to come to fruition?"

Sunday, June 3, 2012

06-03-12

This morning in church I opened my Bible to the following passage:

"Speak up for those who cannot speak for themselves, for the rights of all who are destitute.
Speak up and judge fairly, defend the rights of the poor and needy."  Proverbs 31: 8,9

God seems to have me on a continual journey of understanding what it means to advocate and what it means to influence.  I have learned a lot along the way but feel more and more convinced that an attitude
of grace will make the greatest impact.

Right now I am reading a book that a good friend loaned me.  It is called, "out of my mind" by Sharon M. Draper.  It has been a great book.  It is written from the perspective of a young girl that is in a wheelchair and cannot orally communicate.  She shares all of the conversations in her head and all of the things she wished people knew about her.  I highly recommend the book!!  It certainly has broadened my view and understanding.  The young girl extends grace to all of us that have not walked in her shoes but also gives us a glimpse of the assumptions we make and the limitations we set on people.  With grace she has certainly influenced my understanding.