Sunday, February 11, 2018

A Child's World

As a teacher I have felt as though every child has a secret little world that we should take the time to enter.  Their perceptions, their dreams, and their curiosities hold a treasure worth unlocking.  That is why I love teaching.

I have loved taking courses on education.  I have loved reading books about children.  The best way to learn about children, however, is by sitting on the floor with them, watching them play and listening to their thoughts.

A good friend shared a story with me this morning on Facebook that had another story linked to it.  It was about Iris Grace.  Iris Grace is a little girl affected by autism and she lives in a beautiful world of color and creativity.  Her parents and her friends have found a way to enter her world and what a blessing that has been.  

I have a collection of expressions of art in my home beautifully done by adults and children living with a label but blessed with a powerful gift.  I will be adding some of Iris Grace's artwork to my collection and reading her story.  I wanted to share her gift to the world with you so you can be blessed by it as well.  


Thank you, Iris Grace!  I look forward to having your artwork in my home!


Tuesday, February 6, 2018

Understanding Death

At 56 years old, I have walked through the passing of three great-grandparents, four grandparents, a father, a father-in-law, a brother and a brother-in-law and a number of friends.  I lost my last great-grandparent when I was in my early 30's.  I remember my emotions were somewhat distant because my great-grandfather was 106 when he passed.  He was old, had lived a wonderful life, and I knew he was tired, very tired.

When I started loosing my grandparents it was more personal.  I knew that I would never have that type of relationship in my life again.  I was spoiled (in a healthy way), loved on and prayed for in a different way than parents can.  They left a mark on my life that I would always carry with me.  For the first time in my life I also had to acknowledge the mortality of my parents as they would move to the top of the ancestral ladder.

The loss of a parent, however, is indescribable.  I suppose the best way I can describe it is having a large part of my heart cut out that leaves a large gaping hole.  Fifteen years have passed since I lost my father.  My faith in God and my love for my dad have allowed the regeneration of a complete heart again.  The loss of my father, as well as my father-in-law, led me to acknowledge the circle of life and all of its joys and sorrows.

Lastly, the loss of siblings was a loss I never anticipated.  It felt unfair and made me realize the fragility of life and to never take it for granted.

In the last couple of weeks I have been studying the journey of life to better understand it in its entirety.  I recently read the book, Final Gifts by Maggie Callahan and Patricia Kelley.  I heard about this book for years and I am so glad I finally read it.  It helped make the passage of this life to eternal life more normal and it answered a few questions I have had for years.

It is intriguing that the subject of death makes most of us incredibly uncomfortable.

"There's a reason for this awkwardness.  Besides the absence of easy answers to questions like the ones above, death has become remote, no longer an integral part of life, 
but a fearsome and unwelcome visitor."

Further on, it says,

Today many families don't have close, frequent, or continuous involvement with the one dying.  Unlike earlier generations, they don't learn how to be at ease with someone whose life is coming to an end.  Illness and death have been moved out of the house and into the hospital or nursing home.  Professionals provide the care; relatives and friends become spectators watching something occur-not in a continuous stream of emotions and experiences from which to learn, but in awkward chunks of time, determined by official visiting hours that leave them uncomfortable and unsatisfied.

                                                                      --Final Gifts

I observed the first portion of the book as knowledge.  I responded with a "Yes, that makes sense," but then it got personal.  All of the memories of loosing my little brother came back to me.  On that cool fall day, ten days before I would turn 50, I sat by his bedside.  I was both mystified and grateful.

Larry had been battling a number of health challenges but it was renal cancer that would claim his life.  His final days came upon us like a thief in the night but as his passing approached, he gave us a precious, final gift.

Larry's eyes were open but he didn't look at us, he looked past us.  He would often put his hands in the air as if trying to take hold of something and then he said, "Hi Dad!"  I cannot remember his exact words but he told Dad it wasn't time yet and he would see him in a few days.  He also told us that Dad's knees were fixed and he looked great.

Those moments were mystifying because we couldn't see what Larry was seeing, yet we knew it was a glimpse into heaven.  I was grateful that Dad felt closer in those moments and grateful that Larry was going to be embraced on the other side, by not only his heavenly Father, but his earthly father as well.

I have respected the ministry of those that work in hospice care for years, but now more than ever, I see the value of it.  As Bill and I have met with people walking through the journey of aging parents, we have experienced some commonalities in the conversations we have had.  The surprises and difficulties of aging parents is not that different from becoming parents.  We don't really know what we are doing. Education through classes, seminars, books, and conversations with people farther along on the journey are our best allies.

I realize that this post has been heavy, but it is a part of life that we "have to walk right through the middle of."  Don't worry, we will get a little more light-hearted soon.  I already have plans in my head to share the beautiful stories of children, their perspectives on life and friendship, and the ability to embrace friendships with friends of all abilities.  I look forward to sharing the stories!

You may also want to read the blog post, the day Daddy died


Monday, January 29, 2018

Journeys of Grace

Bill and I had our first official class on Aging Parents and Loss a couple of days ago.  More than ever, I know this information is needed.  I remember bringing our first child home from the hospital, setting her down, and then Bill and I thinking, "Now what do we do?"

I don't know that it is that different when we face the journey of aging parents.  When we bring that baby home, our hearts are so full of love for them.  We want to do everything right so our child's life will turn out well.  We want them to feel loved, feel secure, and be happy.  With aging parents, we feel the same way.  In both situations we realize how little we know.

I have had many conversations with people since Bill and I felt called to approach this subject and started educating ourselves.  As acquired disabilities start to emerge, we wonder how much to protect our parents, as well as how much independence to give them.  The common feeling that has been expressed is, "I feel disrespectful thinking there may be something wrong.  Why am I even thinking there may be."  On the coattails of feeling disrespectful, is the feeling of guilt.

What is different about raising children and raising parents is that the journey with parents will most likely get harder, not easier.  They may acquire more disabilities and medical issues.  Their cognitive abilities may become more impaired.  The role we have played as a child may suddenly necessitate the role of a parent instead.

The best way to handle this journey is through education.  The more we prepare for the steps ahead, the better off we will be.  In addition, it helps to be surrounded by others who have either walked the journey ahead of us, or are at the same stage and can be supportive.  

Finally, I think the most important thing is to grant grace to our parents, as well as ourselves.  Every new stage of life has its challenges as well as its joys. It is only in walking in grace and faith that our parents will receive the respect they so richly deserve.

Therefore, as God’s chosen people, holy and dearly loved, clothe yourselves with compassion, kindness, humility, gentleness and patience.  
Colossians 3:12

Monday, January 22, 2018

Aging Parents and Loss This Saturday!

We have been receiving e-mails from a variety of friends that are concerned about their parents.  It can be difficult to open up the conversation about adult-onset disabilities.  Sometimes it can feel like we are being disrespectful but in reality it is because we care about them and their well being.

Bill and I are looking forward to sharing what we have educated ourselves on and learned over the last 16 years.  We look forward to open and honest discussion that will help participants feel more comfortable, as well as knowledgable.

Send us an e-mail at gracewithoutmargins@aol.com if you are interested in attending.  We will be covering a variety of topics.  We hope you will be able to join us, but please let us know if you will be attending so we will be properly prepared.



Aging Parents and Loss 
Issues & Decisions Rarely Talked About

Presented by Bill & Deana Boggess, Managing Directors,
Grace Without Margins, LLC

Presentation will be held:
Saturday, January 27, 2017 
1:00 pm - 6:00 pm Cedar Park, Texas
Location and specifics will be given when you register.
Register at:
gracewithoutmargins@aol.com

Registration fee $35 to cover training, materials,
and refreshments


Limited spots Register soon!

Training Topics
  • Acquired Disabilities of Aging
  • Keeping the Elderly in Community
  • Independence
  • Home Care vs. Facility
    Placement
  • Role Reversal
  • Stages of Dementia
  • Respect
  • Guilt
  • Forgiveness
  • Sudden Loss/Stages of
    Grief
  • The Long Goodbye
  • Final preparations
  • Wills/Trusts/Medical
    Advanced Directives
  • Last Wishes
  • Personal Applications
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Bill and Deana have served in disability ministry for over 20 years. For the last six years they have provided training to churches and schools on a variety of disability issues. After walking through aging and loss with their parents, they felt the acquired disabilities of aging is a topic too often neglected. Join them for video and oral presentations, as well as group discussions and hand- outs on how to support your parents through the aging process and eventually prepare for your own.

Tuesday, January 16, 2018

Understanding The Loss Of A Child

I read a post today that a sweet friend wrote.  It has stayed with me all day.  I can't imagine the pain she has experienced, but I am so glad she shared about her loss, as well as her sweet son.

So often we feel compassion for another's pain but we have no idea what to say.  I encourage you to read the story .  It will give you better under-
standing and compassion for someone that has lost a child.

There will never come a day, hour, or minute that I don't stop thinking about Colby. Today, 14 years ago, he lost his short battle to Leukemia. Something that no 3 year old child, or child of any age should have to endure. Disease in children is the most gut wrenching, heartbreaking, and unsettling thing to see and experience. Really, there just are no words.
There are parents, and then there are bereaved parents. We are both. What many people don't know, is that I love to hear Colby's name, just as much as my living children's names. I want to speak of him, share things that he loved, and so much more. There's a taboo to this, and it's not anyone's fault. There's an awkward silence when it comes to a deceased child. It makes others uncomfortable. In no fault of their own, it's just how society has worked. 
The truth is, there's no "getting over it", there's no, "time makes everything better". I will always grieve the loss of Colby. The reality is that time just gives you the "time" to learn how to live with it. Time to learn how to not look for a third child at the playground. To not set out a third set of clothes in the morning. To not buy the snacks that he enjoyed when you're shopping. Time to re-create your day to day of being a mother to three littles.
I share this not for sympathy, but in hopes that others might see how bereaved parents live from day to day, and to maybe help fill some of that "awkward" silence. The silence comes when we make new friends, attend new churches, and even when we get asked, "how many kids do you have". And believe me, that happens A LOT. The other one that happens a lot is, "wow, you waited a long time to have a second child". That's a fun one to explain!
Every holiday, birthday, and significant date are reminders. They are reminders that we will never see him play baseball, drive, graduate, get married, have kids....Just think...Can you imagine Christmas without your child? Or your child's birthday, but no child here to celebrate with? 
Bottom line. There's no end to grief. What there is though....is a loving almighty God that has carried me through each and every day. 2 Corinthians 4:17-18, "For our light and momentary troubles are achieving for us an eternal glory that far outweighs them all. So we fix our eyes not on what is seen, but on what is unseen, since what is seen is temporary, but what is unseen is eternal."
As a bereaved parent, I am flawed. I grieve like no other, but I know what true joy is. The joy that I received from being Colby's mom is incredible. The way Colby never met a stranger and the way he always loved, is true joy! He made my life more rich and so much more full. He was a gift. A gift from God even in the midst of grief.
Don't take life for granted. Experience joy. Don't be afraid to support someone during their loss. Don't be afraid that you won't say the "right" thing. Just love them. Love them where they are. That's all we need. And I thank God that He has provided me with incredible friends through the way and through each season. 
Here are a few fun things to know about Colby:
*He was a big boy weighing 10 pounds and 5 ounces when born
*He LOVED everything Spiderman
*He was always happy and always smiled
*He wanted to be just like Blake, but he def had better dance moves
*He loved my friends, and called my best friend Lupe, "Wooopie"
*Colby and our lab Maggie were un-seperable
*He called Chloe "BooBoo". At first he didn't like her getting all the attention, but he became her biggest fan

*He was adventurous and creative with a ton of energy
*His skin color was very dark, more like my dad
*He had a blanket that he took everywhere at all times. It happened to be my brother's blanket. He would stand at the washing machine crying while I washed it and often it didn't even make it to the dryer.
*When he drove his jeep around the yard, he would put his hand behind Chloe's head when he accelerated
*He loved all superhero movies
SO much more, but here are just a few fun things that stand out!
*Hats! He loved hats.
Written by Myra Lundstrom

Thursday, January 11, 2018

Aging Parents and Loss

Bill and I have been serving in disability ministry for over 20 years now.  During 16 of those years we have been on the journey of aging parents and loss.  Just as we felt unprepared for parenting, we also felt unprepared for the acquired disabilities and challenges of aging.  We are still discovering the numerous ways the elderly are being moved to the margins of our churches and communities.  It is with education and understanding that we can help the elderly stay in the center of our families and communities.

Over the years we have experienced the immediate loss of a parent as a result of a car accident.  We walked through the diagnosis of cancer, only to loose the parent nine days later.  We have been on a journey of many goodbyes through the challenges of dementia and lastly have learned to navigate the challenges and adjustments of the typical aging process.

Every person, personality, and diagnosis in the aging process is different, but most likely there will be acquired disabilities along the way.  There are many things we wish we had known beforehand.  Over the last ten years we have taken classes and educated ourselves on a variety of preparation for aging issues.

On January 27 we will be teaching a five-hour course in Austin on Aging Parents and Loss.  We also have plans to present in Denver on March 10.  If you have any questions about our course or would like to register, please contact us at gracewithoutmargins@aol.com for more information.








Tuesday, January 9, 2018

Wendy and Katie Made Perfect

You just have to be grateful when an amazing person walks into your life and I have been since I met Wendy over 20 years ago.  We were in our mid 30's when we met.  Our children were young and we were both trying to navigate our roles as wives, mothers, and women of faith.  I must say I was a little envious of this tiny, beautiful woman but I was truly inspired when I got to know her from the inside out.

A couple of months ago I asked Wendy if she would share her experiences and heart with a group of directors of special needs ministry.  Wendy and her husband have a beautiful daughter with special needs, as well as two sons.  I have loved watching their family grow and develop.  Over the years Wendy has been open and honest about the challenges, as well as the joys, of being a family affected by a disability.  I knew she would be able to give insight to directors and share ideas on how to support families.

As she shared about her journey yesterday, my eyes started to well up with tears.  A conversation we had many years ago suddenly came back to me.  At the time she had been struggling with feeling like the mission field she had served in, and felt called to, had been taken away from her.  She and her husband had been serving in Romania.  You could feel the heaviness of the loss she felt.  But as she shared yesterday, I was overwhelmed with the joy of seeing that God had given her a mission field and a beautiful one.  It was just different than she had imagined.

As Katie grew up and was getting closer to aging out of the public school system, Wendy had started thinking more about the future and how Katie could use her gifts and interests as an adult.  She started doing research, pulled a group of trusted friends together, and began brainstorming on what God might be calling her and her daughter to do.  Having been on the sidelines of their life, I didn't know all of the ways God had blessed their family and business.  I was amazed by how much had happened in such a short period of time. 

At one point Wendy shared, "I have never been so comfortable in my weakness."  Wow!  She has never been so comfortable in her weakness.  In 2 Corinthians 12:9 it says, “My grace is sufficient for you, for my power is made perfect in weakness. Therefore I will boast all the more gladly about my weaknesses, so that Christ’s power may rest on me."

Wendy proceeded to share all of the powerful things she had seen God do.  She shared that she is not trained in business or in the culinary arts, but God keeps growing Katie's Snack Cart.  Watch the video and you will see how Christ's power has rested on Wendy.


The unknowns and fears of ushering our children into adulthood can be frightening, especially when the world doesn't understand the perfect design of all people and the gifts they have been given.  Wendy and Katie are an inspiration as a mother and daughter that serve together and as ambassadors to a watching world that EVERYONE has a gift and a place in this world.

I am so happy for Wendy.  I am inspired by her courage, her humility, and her confidence in God's power to use her and her daughter in such a powerful way!

If you want to know more about Wendy and Katie, go to https://www.facebook.com/pg/Katiessnackcart/reviews/
(and be sure to "like" them!)